There are a variety of respite program options in Eastern Canada including several summer camp programs. These respite programs are listed below by province along with a brief discussion of eligibility criteria, services offered, and links to additional information.
The Government of New Brunswick offers a program called “Community Based Services for Children with Special Needs” or CBSCSN. Through this program, parents can obtain services or items to assist with providing care and extra support including medical transportation, medical and rehabilitation equipment, and respite. To qualify for this program, a child must be have a severe developmental disability that is life long and require daily assistance with everyday activities. Given this requirement, many children with TS may not qualify for this support.
To learn more about this program, please visit: http://www2.gnb.ca/content/gnb/en/services/services_renderer.200975.Access_and_Assessment.html#serviceLocation
Another option for New Brunswickers is a program called “Respite Care Services for Children with Special Needs,” which provides relief and companionship to children under age 21 with any developmental special need in Westmorland, Albert, and Kent counties. Through this program, families can schedule up to 48 hours of relief care per month. Their child will be matched with a volunteer who will provide care in the home or in the community.
For more information, visit:www.volunteergreatermoncton.com
New Brunswick’s “Camp Rotary” is a summer camp that accepts children with disabilities including TS. Camp Rotary is located in Grand Lake and has multiple summer programs available. To learn which program is best suited for your child or children call 506-458-8739.
In Newfoundland, parents looking for respite should consider the province’s “Provincial Special Child Welfare Allowance Program.” To apply for support from this program, a family must have a child with a disability who is under age 18. This program defines disability as any mobility impairment, speech impairment, ADHD, PDD, psychological disabilities, and learning disabilities (MS, epilepsy, and movement disorders are considered a mobility impairment). A family must be able to provide proof that the disability or disabilities impacts the child’s daily life and requires special care. The program also takes the family’s financial situation into account when determining supports. A variety of services are available through the Provincial Special Child Welfare Allowance including residential respite, fees for childcare/preschool, home supports, transportation to medical appointments, financial support to hire home support, and childcare to enable employment. Families can access this program through their regional health authority. An application and home visit occur with the support of a social worker who will provide referrals to the appropriate services offered by the health authority. To contact the health authority office closest to you, check the numbers listed by region under the disability heading at: http://www.health.gov.nl.ca/health/department/contact.html#disabilities_services
In Nova Scotia, the “Direct Family Support for Children” program offers respite (in-home, facility-based, or day programs) as well as funding for transportation and medication. Children who live at home, are under age 19 and have a significant physical disability which causes functional limitations or a mild to moderate intellectual disability with a significant behavioural challenge, are eligible for support through this program. To apply for support, families must contact their regional office.
To learn more about the respite services in Nova Scotia, take a look at this helpful guide: http://disability.novascotia.ca/sites/default/files/Respite%20Guide%20draft%202%204%20August%2010%202012%20revised%20sept%2017%2012.pdf
Prince Edward Island
PEI’s “Supports for People with Disabilities” provides respite, community living supports and community participations supports to children with disabilities that cause ongoing functional limitations. Mental illness and behavioural disorders are excluded from coverage under this program. The disability must be developmental or physical for a child and their family to qualify for support. Families can apply by contacting the phone number that corresponds to their area. All numbers are listed here: http://www.gov.pe.ca/sss/index.php3?number=1018613&lang=E
Charlottetown’s “Camp Gencheff” provides summer camp program options between the end of June and August as well as respite programs during weekends in October and May. Camp programs are six days and five nights long and cost $125 for PEI residents. Their respite programs cost $150 per weekend.
To learn more about Camp Gencheff, email: firstname.lastname@example.org